Director, Support / Education Programs – Hydrocephalus Association – Bethesda, MD

Position Overview

Reporting to the Hydrocephalus Association CEO and serving as a core member of the Management Team, the Director, Support & Education Programs, is responsible for developing/creating, planning, managing, implementing and evaluating all aspects of broad constituent support and education programs that will meet the needs of a wide-range of stakeholders in the Hydrocephalus Association.

This position provides strategy/vision, direction, and management for support and education operations, and helps to advance the goals of the organization through the development of new and existing educational and support programs, with the ultimate goal being to eliminate the challenges of hydrocephalus.

Overseeing a wide-array of programs including the Community Network Program, support & information inquiries, peer mentor program, educational conferences and events, publications, scholarship program, Teens Taking Charge, provider outreach and our Medical Advisory Board (MAB), this position is uniquely positioned to grow our connection to the hydrocephalus-impacted community through proven outreach and support programs.

In partnership with the Support & Education Committee, the Director will drive the key support and education components of the Hydrocephalus Association five-year strategic plan.


The ideal candidate will have an advanced degree, preferably in social work, public health, mental health, nursing, education, counseling, or health care administration. Bachelor’s degree required. Demonstrated track record of success working with people in need, such as patients and their caregivers. Experience with a health-related charity a plus. Senior level experience (5+ years) and skills in all aspects of program management, budgeting, event planning, and volunteer management. Experience evaluating and communicating program outcomes and impact.Previous experience working in a national voluntary health organization is a plus. Experience motivating, supervising and evaluating program staff. Superior interpersonal skills and ability to interact competently and courteously with a broad diversity of individuals: patients, caregivers, physicians, volunteers, senior level business executives, board members, university and government officials, fellow staff members, donors and other stakeholders. Strong work ethic; results-oriented and self-motivated. Demonstrated computer proficiency, including strong command of Microsoft Office computer software programs, especially Word, Excel, and PowerPoint, and email applications. Ability to travel and to conduct limited evening and weekend work. A self-motivated team player with the ability to work in an organization with a strong team culture and collaborative approach to working with volunteers and co-workers in meeting goals.

Hydrocephalus Association

The Hydrocephalus Association (HA) is the largest national nonprofit organization dedicated to hydrocephalus. The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. This will be accomplished by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus. HA’s vision is a future without hydrocephalus.

The Hydrocephalus Association offers a very competitive salary and comprehensive benefits package which includes employer-paid medical, dental, vision and life insurance coverage, as well as a transportation stipend, a 403(b) plan, paid vacation, and more.

How to apply

If interested, please submit your cover letter, including salary requirements, and a resume to: Please include “Director, Support & Education Programs” in the subject line. No telephone calls, please.

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